12.05.2015 |
World Vitiligo Day 2015:
UPDATE
We have collected
487,232 signatures of
500,000
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You are one of nearly half a million people to have signed our petition to the UN Secretary General, asking for June 25th to be officially designated World Vitiligo Day (WVD).
The more names we have, the stronger we are – so thank you for your support.
Many of you ask questions about WVD, so here is a rundown of the most common queries:
Where are the World Vitiligo Day 2015 headquarters?
This year, the headquarters will be in Shenyang, China, under the presidency of Prof. Xing-Hua Gao, MD, Chairman and Professor of Department of Dermatology, No.1 Hospital of China Medical University (see photo here below).
Which country do the most petition signatures come from?
That distinction currently belongs to India, followed by the US, Indonesia and then China. You can see a full, up to date breakdown here.
Is there an official color, image or logo for WVD?
In a word, no! We encourage individual organizations to use whatever works best for them. VITSAF in Nigeria, for example, uses purple, whereas others are using a black and white combination.
Is there a WVD T-shirt?
Yes, thanks to Olumide Omololu who won a competition in 2014 to design an ‘unofficial’ WVD T-shirt. This proved so popular that we distributed 1500 of the shirts to support groups across the world, but we have now run out of stock. So, if you want to wear WVD T-Shirt, try doing it yourself - just download the design file you like from here and then send or take it to a print on demand T-shirt shop.
Do you have anything I can use to help promote WVD?
Yes, we have put together a media toolkit to help you launch local awareness campaigns. Go here and scroll down to the ‘Media’ section to find the relevant downloads.
What can I do to help?
Signing our petition and telling people about WVD is a great start. More specifically, we are currently asking dermatologists and beauty clinics to offer free skin check-ups for vitiligo and other pigmentation disorders on or around June 25th. Last year, 50+ participating doctors and clinics in 17 countries provided free consultations to well over three thousand patients. So, if you’re a dermatologist or beautician, or you know somebody who is and can help us, we would love to hear from you. Please drop us a line.
If you already have something planned for World Vitiligo Day then please do let us know by emailing
info@25June.org. We’ll add your activity to our WVD calendar of events.
The World Vitiligo Day 2014 Photos:
Support group is getting ready in Kenya.
Meeting at PGIMER in Chandigarh, India. Prof. Torello Lotti and Prof. Davinder Parsad.
A new 'world record' with 225 vitiligo patients seen by dermatologists at PGIMER on June 25, 2014.
It is never too late to sign your petition, and help others that need the support world wide to keep their hopes alive !
World Vitiligo Day Brazil 5:
This year, the campaign is coming of age as a truly global event. World Vitiligo Day'14 was the biggest yet, with a vast array of awareness and support events spanning the globe. Celebrations run the entire week, to accommodate multiple presentations, speeches and other events aimed at the patients and healthcare community.
World Vitiligo Day was inaugurated in 2011 as a grassroots advocacy project to bring the plight of the approximately 100 million sufferers worldwide into the spotlight (Wikipedia). As perhaps the world most famous vitiligan, the name of Michael Jackson has always been synonymous with vitiligo. The anniversary of his tragic and untimely death on June 25th was chosen as World Vitiligo Day in honor of his own personal yet very public battle with the disease. And growing number of celebrities like Jon Hamm, Scott Jorgenson, Holly Marie Combs and Yvette Fielding are becoming more vocal about their own experiences in living with vitiligo.
In the last three years, campaign grew from a few volunteers handing out fliers in the streets and a small number of dedicated doctors to 484,687 activists and 50+ clinics offering free skin check-ups in 17 countries. We have already set up two new 'world records' with 225 vitiligo patients seen by dermatologists at PGIMER in the morning, and 800+ doctors attending events in the afternoon. Forty WVD-branded rickshaws paraded the city all day long.
Finally, burden of vitiligo is recognized by the mainstream media such as Cosmopolitan, Vogue, Time, MTV, BBC in the last two months, and ultimately by CNN International and Fox 2 TV today.
The Early Days
The idea of a World Vitiligo Day was first put forward by Steve Haragadon, the founder of the Vitiligo Friends network from USA and then later developed locally by Ogo Maduewesi, a vitiligo patient who is the Founder and Executive Director of the Vitiligo Support and Awareness Foundation (VITSAF) in Nigeria. In early 2012, the VR Foundation has launched the 25June campaign and raised it to the global level . Stories from 2012 and 2013
Signatures Update
Updated May 20th, 2015
We have collected
487,232 signatures of
500,000
487232) Helon Hammond, houston, usa, Manager IT, 05/20/2015 20:56
487231) Privacy Protection, 05/20/2015 18:56
487230) Zenat Rostam SHahi, babol, Iran, ._., 05/20/2015 15:44
487229) Negar Zand, Los angeles, USA, model, 05/20/2015 15:37
487228) saeed kelash, Akbar Abad, Iran, Barber, 05/20/2015 15:32
487227) mohamad hasan, rey, Iran, , 05/20/2015 15:29
487226) mas khodainasab, Khozestan, Iran, , 05/20/2015 15:27
487225) Hamed sadri, tehran, IRAN, Ok, 05/20/2015 15:22
487224) Elaheh Salami, Tehran, Iran, hi, 05/20/2015 15:20
487223) hasan asgari, tehran, IRAN, OK, 05/20/2015 15:16
487222) Ahmad nazari, alborz, Iran, thanks, 05/20/2015 15:14
487221) ali Afshar, nasim shahr, Iran, ..., 05/20/2015 15:10
487220) Sabine Fuhrmann, Stuttgart, Germany, , 05/20/2015 04:44
487219) Anna Lewis, Trenton, United States, Student , 05/20/2015 02:42
487218) Takeisha Archbald, Wilmington , USA , Self-Employed , 05/19/2015 20:34
487217) reza mohamady, mashhad, iran, , 05/19/2015 16:32
487216) Wade Nelson, Cottage Grove, USA, Auditor, 05/19/2015 12:28
487215) Megan Hess, Fort Collins, United States, student, 05/19/2015 11:31
487214) Privacy Protection, 05/19/2015 10:51
487213) Robin King, Garland, usa, , 05/19/2015 00:02
487212) Karoly Latak, Szeged, Hungary, Entrepreneur, 05/18/2015 20:08
487211) Nayades Luciano, New York, USA, Finance, 05/18/2015 19:38
487210) J Jolley, Brooklyn, USA, Office Manager, 05/18/2015 19:30
487209) C Jolley, Ny, Usa, Freelance court reporter, 05/18/2015 19:21
487208) Dominika Kowcuniak, Gorzów Wielkopolski, Poland, , 05/18/2015 18:39
487207) Privacy Protection, 05/18/2015 14:06
487206) Patricia Bada, Buenos Aires, Argentina, Maquilladora, 05/18/2015 13:36
487205) Gomotso Ntheli, Bloemfontein, South Africa, Unemployed, 05/18/2015 10:25
487204) Privacy Protection, 05/18/2015 02:24
487203) Lucie Kocourkova, Prague, Czech Republic, PR, 05/17/2015 22:43
487202) mohamad folady, iran, saveh, , 05/17/2015 18:16
487201) Malina Salcie, Rome, Italy, , 05/17/2015 17:36
487200) Privacy Protection, 05/17/2015 15:16
487199) Aliakbar Soleimani, Tehran, Iran, , 05/17/2015 14:16
487198) Privacy Protection, 05/17/2015 10:50
487197) katayoon meidanipour, tehran, iran, , 05/17/2015 07:53
487196) maryamsadat latifi, Tehran, Iran, employee, 05/17/2015 07:51
487195) hatef lotfi, babolsar, iran, , 05/17/2015 07:21
487194) ELAHEH RAZMFARSAA, KERMAN, IRAN, , 05/17/2015 07:03
487193) leila hoseini, Tehran, Iran, , 05/17/2015 06:29
487192) Elham Ranjbari, Tehran, Iran, , 05/17/2015 05:19
487191) Ashley Sebring, Bearden, United States, , 05/17/2015 04:59
487190) ali mohammady, tehran, iran, , 05/17/2015 04:19
487189) Shirish Sathaye, Saratoga, USA, Venture Investor, 05/16/2015 20:05
487188) LEILI SABUR, ARDABIL, IRAN, , 05/16/2015 20:00
487187) Nokulunga Ngubane, Johannesburg, South Africa, Food Scientist, 05/16/2015 19:46
487186) Mansoor Zoghi, Ahwaz, Iran, Engineer, 05/16/2015 17:56
487185) hossein vitiligo, liyan shampo, IRAN, Doctor, 05/16/2015 14:01
487184) Privacy Protection, 05/16/2015 13:50
487183) mohammad hossein, tehran, IRAN, driver, 05/16/2015 13:46
487182) Todor Stoianov, Sliven, Bulgaria, , 05/16/2015 11:10
487181) Privacy Protection, 05/16/2015 11:00
487180) judith rowe, south Australia, australia, retired., 05/16/2015 09:26
487179) Stephanie King, CA, USA, , 05/16/2015 08:46
487178) azar nouri, tabriz, iran, nurse, 05/16/2015 08:23
487177) Autumn Colpean, Saint Charles, USA, , 05/16/2015 08:22
487176) Virginia Vela, san Jose , usa, citizen, 05/16/2015 07:25
487175) bea lamar, Los Angeles, USA, Artist, 05/16/2015 05:25
487174) Jasmine Ballard, Indianapolis, United States of America, , 05/15/2015 23:58
487173) ANGELA Moonlight, Neverland, greece, , 05/15/2015 21:26
487172) AGGELIKI FEGGAROKLWSTI, neverland, greece, , 05/15/2015 21:24
487171) Rita Wagner, Neumünster, Deutschland, , 05/15/2015 21:08
487170) melika mjfollower, isfahan, Iran, , 05/15/2015 20:27
487169) karan chavda, mumbai, india, student, 05/15/2015 19:42
487168) firehiwot gebremichael, mekelle, Ethiopia, student, 05/15/2015 17:14
487167) Fariba Ahmadi, Tehran, Iran, Workless, 05/15/2015 16:52
487166) Fariba Khodadadi, Hamedan, Iran, Workless, 05/15/2015 16:37
487165) Privacy Protection, 05/15/2015 16:10
487164) Privacy Protection, 05/15/2015 15:45
487163) dude mj, kiato, greece, , 05/15/2015 15:36
487162) Bill Miller, Burton , USA, Mill operator , 05/15/2015 14:25
487161) Lisa Greer-Lee, Shelby Township, US, RN, 05/15/2015 13:14
487160) maryam asgari, Doroud, Iran, techer, 05/15/2015 12:19
487159) petra winter, Braunschweig, Deutschland, , 05/15/2015 12:17
487158) Christine Rausch, Vienna, Austria, , 05/15/2015 12:10
487157) javad asghari, zahedan, iran, , 05/15/2015 12:07
487156) Sebastian Jackson, Juelich, Germany , , 05/15/2015 08:28
487155) nasim zoghi, Ahwaz, Iran, teacher, 05/15/2015 07:47
487154) zahra Ansari, bushehr, Iran, , 05/15/2015 07:26
487153) mohammad zaher khosravi, birjand, iran, , 05/15/2015 06:23
487152) Liane Pedersen, Kolding, Denmark, , 05/15/2015 05:57
487151) ahmad baran, gonabad, iran, , 05/15/2015 05:38
487150) Susan Stephenson, Hull, United Kingdom, , 05/15/2015 05:21
487149) Chantelle Landon, Hull, United Kingdom, , 05/15/2015 05:21
487148) Nins Belleza, SANTA ROSA CITY, Philippines, none, 05/15/2015 05:14
487147) S Jafari, Tehran, Iran, Student, 05/15/2015 04:27
487146) Monica Jones, Atlanta, USA, , 05/15/2015 00:41
487145) Alvin Stroud, Ann Arbor, United States, , 05/15/2015 00:11
487144) Stanislav Babaevskii, Moscow, Russia, Doctor, 05/15/2015 00:03
487143) Biljana Krstic, Belgrade, Serbia, teacher, 05/14/2015 23:47
487142) Ivica Lazarevic, Aleksinac, Srbija, , 05/14/2015 23:44
487141) iman e.bakhshi, ahvaz, iran, civil engineer, 05/14/2015 22:22
487140) nahid jannati, tabriz, iran, member of staff, 05/14/2015 21:29
487139) Sreedhar venigalla, Glen Carbon, USA, , 05/14/2015 21:06
487138) Samaneh Asemani, Bandar abbas, Iran, , 05/14/2015 21:02
487137) Privacy Protection, 05/14/2015 20:58
487136) debora alves, Fortaleza, Brazil, Webmaster, Blogger, 05/14/2015 20:53
487135) Privacy Protection, 05/14/2015 20:40
487134) Privacy Protection, 05/14/2015 19:25
487133) Privacy Protection, 05/14/2015 19:02
487132) Amirreza Shamiati, Semnan, Iran, , 05/14/2015 18:45
487131) Jasmina Vrtacnik, Aleksinac, Srbija, ucitelj, 05/14/2015 18:14
487130) Rebecca Barton, Norwich, England, , 05/14/2015 17:58
487129) mahsa mohammadi, zanjan, Iran, teacher, 05/14/2015 17:42
487128) javad rudsarabi, sabzevar, iran, , 05/14/2015 17:24
487127) soheil emadi, sari, iran, , 05/14/2015 16:02
487126) Tahere Nazari, khooramabad, iran, Workless, 05/14/2015 15:05
487125) maysam shahsavari, khz, iran, , 05/14/2015 14:53
487124) Ava Mehri, Shiraz, Iran, , 05/14/2015 13:15
487123) hamidreza farhadi, shahrood, iran, , 05/14/2015 13:03
487122) atefeh hashemi, shahrood, iran, , 05/14/2015 12:54
487121) Alireza naeimi, tabriz, iran, , 05/14/2015 12:49
487120) grgo grgic, Split, Croatia, engineer, 05/14/2015 12:14
487119) ahmad abdollahzadeh, isfahan, iran, nioc jobholder, 05/14/2015 12:09
487118) Amir Soleimani, Tehran, Iran, , 05/14/2015 12:06
487117) Privacy Protection, 05/14/2015 11:15
487116) Privacy Protection, 05/14/2015 09:50
487115) Shani Burnett-George, League City, United States, IT Project Manager, 05/14/2015 03:32
487114) Michael luedke, Mukwonago, usa, operations director, 05/14/2015 01:37
487113) shannon luedke, Mukwonago, usa, childcare, 05/14/2015 01:33
487112) Maria Jose Bove, Taquaritinga, Brasil, Psicóloga, 05/14/2015 00:11
487111) Сергей Паланчук, Chisinau, Moldova, Безработный, 05/14/2015 00:09
487110) Robin McLean, Winnipeg , Canada, , 05/13/2015 23:01
487109) Privacy Protection, 05/13/2015 22:29
487108) Privacy Protection, 05/13/2015 21:23
487107) Kerstin Hellmanzik , Eberswalde , Germany, , 05/13/2015 12:48
487106) Privacy Protection, 05/12/2015 22:15
487105) Privacy Protection, 05/12/2015 22:13
487104) Ana Orovic, Belgrade, Serbia, Economist, 05/12/2015 21:41
487103) Privacy Protection, 05/12/2015 03:38
487102) Privacy Protection, 05/12/2015 03:37
487101) Tamás Fehér , Miskolc, Hungary, engeneer, 05/11/2015 20:44
487100) Doris Casasola, Guatemala City, Guatemala, , 05/11/2015 19:07
487099) Privacy Protection, 05/11/2015 14:24
487098) Patrick Brunner, Stuttgart, Germany, , 05/11/2015 08:49
487097) Maria Pia Fassold, North East, USA, Home maker, 05/11/2015 01:45
487096) NORA VITILIGO NOTES, Budapest, Hungary, Editor, 05/10/2015 19:11
487095) Bing Belmes, BGD, PHILIPPINES, Blogger, 05/09/2015 12:30
487094) Kanta Sharma, london, uk, retired teacher, 05/08/2015 22:16
487093) Janet Saavedra, Dallas, United States, court reporter, 05/08/2015 19:54
487092) Fernanda Blondin, São Paulo, Brasil, Analista de Marketing, 05/08/2015 19:28
487091) Privacy Protection, 05/08/2015 18:59
487090) Andrea Tagliacolli, São Paulo, Brasil, Analista de Marketing e Comunicação, 05/08/2015 17:50
487089) amiel pontino, general santos city, philippines, undergrad, 05/08/2015 14:32
487088) Hristina Antonova, Sofia city, Bulgaria, , 05/08/2015 09:03
487087) Privacy Protection, 05/07/2015 23:07
487086) Sara Knezevic, Belgrade, Serbia, , 05/07/2015 16:44
487085) Valeria Venturelli, Cervia, Italy, , 05/07/2015 15:51
487084) Alicia Johnson, Melbourne, Australia, scientist, 05/07/2015 01:20
487083) Pamela Herrera, Santiago, Chile, Asesora de casa particular, 05/06/2015 17:40
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The Sources:
25june.org Website
http://25june.org/en/pages/about
See more Photos:
http://vrfoundation.org/patients--2/world-vitiligo-day/world-vitiligo-day-2014#sthash.S7D8jfv1.dpuf
Facebook Page:
https://www.facebook.com/WorldVitiligoDay
Twitter Page:
https://twitter.com/WVitiligoDay
You guys are ALL soooo amazing ! :clapping: Thanks for your support and LOVE :heart::group::heart: